Let's party! Our official launch...

We are planning to (finally!) officially launch Finnz Fundz, our 501(c)(3) non profit that was founded in honor of our son, Finnegan. Our mission is to help children and families fighting Cystic Fibrosis and coping with the long term hospitalizations that occur in fighting this insidious disease. Our goal is to provide direct financial assistance to families, as well as a sympathetic and understanding ear.
Event is on June 4th from 4-8pm at Indigo Pizza (599 Tiogue Ave, Coventry RI).  We are planning kids karaoke from 4-5pm, some great live music, and an awesome raffle (some Alex and Ani will be included!). Oh, and PIZZA! :)
Tickets are $10 per person. Reserve your ticket now as space is limited!
If you are unable to attend, we hope you will consider helping us by making a direct monetary donation (via paypal or checks can be made payble to Finnz Fundz and mailed to 162 Custer Street, Warwick, RI 02889), or by donating goods or services to our raffle. Please share this event, our website and information about us with your Facebook friends.

All donations are tax deductible.

A big thanks to all those who have continued to support us on this journey!

We're official!!!

We are thrilled to let everyone know that Finnz Fundz is now an official 501(c)(3) tax exempt organization!!! WOOHOO! We are hard at work on our business and fundraising plans. We have several larger donors who were awaiting the word about our tax status--including a jewelry company that is going to design a piece for our organization! Exciting things to come!!!

Finn's birthday...

It's Finn's birthday today. He would have been 6. Missing him terribly every day, but highlighted on days like this...

As a way to celebrate Finn, we filed articles of incorporation with the secretary of state today!!! Our filing will be official later this afternoon, then we start the IRS process. Slowly but surely making Finnz Fundz a reality!

Op-ed on CNN.com

Sen. Sheldon Whitehouse and Elizabeth Edwards have co-authored an op-ed that has been posted on cnn.com regarding bankruptcy reform.

http://www.cnn.com/2009/OPINION/12/15/edwards.whitehouse.medically.bankrupt/index.html

Finn's presence

I've never been a "believer"--no church for me, thanks--but have always had a sense of "something" bigger than me. Since Finn's death, I haven't know what to believe, and certainly take no solace or comfort from whatever "god" other people believe in, because what Finn suffered through should not have been allowed to happen if there were such a being. Regardless, I have had a sense at times of Finn's presence, in particular one time last week.

We got a magazine at the house. Patrick was flipping through it, and saw a cool art project. There was a picture of the artist and his son, whose name was...Finn. Patrick goes through a few more pages, and comes across an article about places to see in New Olreans. We are spending our first Christmas (though not celebrating the holiday itself at all) with Finn in...New Orleans. I then go through the magazine, and find a picture of three butterflies together. Butterflies are hugely symbolic in loss/transformation in general, and specifically with Finn. After I saw the butterflies, I couldn't help but cry.

The cynical bitter person inside me knows that this could all be explained away as coincidence. But the mom inside me knows that it can't be dismissed so easily.

Testify!

I testified before the Senate judiciary subcommittee on 10/20, along side Elizabeth Edwards. Al Franken was there, which was cool--he made some funny faces during the hearing and then nailed a conservative policy wonk with his questions. It was a whirlwind trip to DC--less than 24 hours, lots of nerves, then the "high" after my testimony was done.

A link to the full hearing (I testify first)--

http://www.c-spanvideo.org/program/289547-1

The story was quickly picked up and covered on CNN, then the bill and our story were covered on Countdown with Keith Olbermann on MSNBC. Hearing Keith say my name was pretty awesome--have had a crush on him since his days at ESPN!!!

Link to Countdown Video--

http://www.youtube.com/watch?v=4Mxha9xbOSk

I got to do a live interview on MSNBC at the local NBC affiliate the day after the testimony (will try to upload soon) and then did an interview for an NPR show called "The Takeaway", which is out of NY--http://www.thetakeaway.org/stories/2009/oct/23/bankruptcies-rise-medical-debt/

There was an AP story with a picture of me and Elizabeth Edwards that got picked up by many newspapers--including the Providence Journal, Boston Globe, Guardian (UK!) and the NY Times. I am in the newspaper of record!!!!!

Today I did an interview with Fox 25 in Boston--http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.myfoxboston.com%2Fdpp%2Fmorning%2Ffighting-to-fix-medical-bankruptcy-laws&h=c9d343eb2a0c69b096d48bb9a1937ba3

It's been quite a trip over the past few weeks. It feels good to be able to do SOMETHING that might help others in our situation in the future. But talking about Finn and what we went through, as composed as I have looked on TV, has been very trying at times. I miss him every moment of every day.

Many thanks to those who have watched and responded to my appearances! Your support means alot!

Helping with the issue of medical bankruptcy

I was invited to meet with Sen. Sheldon Whitehouse on 9/28. The Senator was holding a healthcare roundtable focused on the issue of medical bankruptcy--he is proposing legislation that would help make the bankruptcy process for families (due to medical crises) easier and less expensive, including a provision to help protect such families from losing their homes. It was a great experience, and I even got some press coverage!

Article Link: http://whitehouse.senate.gov/newsroom/news/article/?id=0A86B871-93D9-466E-88E5-F44D4452E8F6

TV Interview Links:
http://www.abc6.com/news/rhodeisland/62411087.html

http://www.wpri.com/dpp/news/12_for_action/nat_wpri_call_12_medical_debt_hits_all_time_high_20090928_mds

I received a call from the Senator's DC office today, inviting me to come to share my story/testify before the Judiciary Sub-Comittee. I was v. worried that because I started a new job on Monday I might not be able to go. But, I am pleased to say that my director is awesomely understanding about this opportunity, and I will be testifying on 10/20!!!!!!!!!!!!! There will be 5 experts testifying, and then little old me. I was asked by the Senator's staff person if I was ok talking with the media (YES!) because there will likely be lots of press coverage and I may have a chance for my story to be covered in the national press! Wow!

Look out CSPAN, here I come!