May 5, 2011
FOR IMMEDIATE RELEASE
For more information, contact Kerry Burns, firstname.lastname@example.org. (401) 527-1773
Local Couple Who Lost Son to Cystic Fibrosis Launch Non-Profit Organization
Coventry, RI – Kerry and Patrick Burns know the difficulty of fighting Cystic Fibrosis and want to use their experience to help other families going through similar struggles. Finnz Fundz, the 501(c)(3) non profit organization the Burns’ founded in memory of their son, Finnegan, is holding an official launch party on Saturday, June 4th, from 4-8pm at Indigo Pizza (599 Tiogue Avenue in Coventry, RI). The event will feature “kid’s karaoke”, a raffle and local musicians.
Finnegan Burns was diagnosed with Cystic Fibrosis at birth. Finnegan thrived in all areas until hospitalized in intensive care in February 2008. For the duration of Finnegan’s 13 month hospitalization, his parents were by his side. Through the kindness of friends, family and strangers, they received much needed financial and emotional support. Kerry Burns, Executive Director of Finnz Fundz, states, “No family should have to decide whether or not they can be with their child at their most needy and vulnerable time due to financial worries.”
The goal of Finnz Fundz is to provide direct financial support to children and families fighting Cystic Fibrosis and facing the often common long term hospitalizations that occur in fighting the disease. Ms. Burns states, “While there are organizations that provide excellent funding for research into the disease and the development of new treatments, we were unable to find an organization that provided direct financial contributions to families; we hope to fill that gap.” Finnz Fundz will outreach families through an already established network of Cystic Fibrosis care centers, focusing initial efforts in the New England Region.
For more information or interviews, contact Kerry Burns at (401) 527-1773.