I apologize for not updating the blog sooner. Finnz Fundz had a great summer!
Our launch party was a HUGE success! A big thank you to the nearly one hundred people who attended our party at Indigo Pizza. We are so thankful that Mary Day lent us her hospitality and fabulous space. Larry and the Reverbs rocked the house and provided awesome entertainment, and the kids got to be the stars while doing some karaoke. The raffle was a huge success--we couldn’t have done it without all the great prizes that were donated! We were amazed by the generosity!
With the money we’d raised online plus the money raised at our event, we’re at nearly $10,000!!! SO excited to start helping families! Outreach letters and information have been sent to the CF Care Centers in New England.
We also have some new exciting news--we are partnering with Alex and Ani (www.alexandani.com), a local RI jewelry company that is becoming well known around the world. Owner of Alex and Ani, Carolyn Rafaelian, has approved a bracelet design that will be presented through her Charity by Design division, and twenty percent of all sales of this special charm will be donated to Finnz Fundz!!! We are so excited and thrilled to be working with such a forward thinking company. The design will be going to production soon, and we will reveal it as soon as we can!
Monday, September 5, 2011
Sunday, May 8, 2011
Press release
May 5, 2011
FOR IMMEDIATE RELEASE
For more information, contact Kerry Burns, finnzfundz@gmail.com. (401) 527-1773
Local Couple Who Lost Son to Cystic Fibrosis Launch Non-Profit Organization
Coventry, RI – Kerry and Patrick Burns know the difficulty of fighting Cystic Fibrosis and want to use their experience to help other families going through similar struggles. Finnz Fundz, the 501(c)(3) non profit organization the Burns’ founded in memory of their son, Finnegan, is holding an official launch party on Saturday, June 4th, from 4-8pm at Indigo Pizza (599 Tiogue Avenue in Coventry, RI). The event will feature “kid’s karaoke”, a raffle and local musicians.
Finnegan Burns was diagnosed with Cystic Fibrosis at birth. Finnegan thrived in all areas until hospitalized in intensive care in February 2008. For the duration of Finnegan’s 13 month hospitalization, his parents were by his side. Through the kindness of friends, family and strangers, they received much needed financial and emotional support. Kerry Burns, Executive Director of Finnz Fundz, states, “No family should have to decide whether or not they can be with their child at their most needy and vulnerable time due to financial worries.”
The goal of Finnz Fundz is to provide direct financial support to children and families fighting Cystic Fibrosis and facing the often common long term hospitalizations that occur in fighting the disease. Ms. Burns states, “While there are organizations that provide excellent funding for research into the disease and the development of new treatments, we were unable to find an organization that provided direct financial contributions to families; we hope to fill that gap.” Finnz Fundz will outreach families through an already established network of Cystic Fibrosis care centers, focusing initial efforts in the New England Region.
For more information or interviews, contact Kerry Burns at (401) 527-1773.
FOR IMMEDIATE RELEASE
For more information, contact Kerry Burns, finnzfundz@gmail.com. (401) 527-1773
Local Couple Who Lost Son to Cystic Fibrosis Launch Non-Profit Organization
Coventry, RI – Kerry and Patrick Burns know the difficulty of fighting Cystic Fibrosis and want to use their experience to help other families going through similar struggles. Finnz Fundz, the 501(c)(3) non profit organization the Burns’ founded in memory of their son, Finnegan, is holding an official launch party on Saturday, June 4th, from 4-8pm at Indigo Pizza (599 Tiogue Avenue in Coventry, RI). The event will feature “kid’s karaoke”, a raffle and local musicians.
Finnegan Burns was diagnosed with Cystic Fibrosis at birth. Finnegan thrived in all areas until hospitalized in intensive care in February 2008. For the duration of Finnegan’s 13 month hospitalization, his parents were by his side. Through the kindness of friends, family and strangers, they received much needed financial and emotional support. Kerry Burns, Executive Director of Finnz Fundz, states, “No family should have to decide whether or not they can be with their child at their most needy and vulnerable time due to financial worries.”
The goal of Finnz Fundz is to provide direct financial support to children and families fighting Cystic Fibrosis and facing the often common long term hospitalizations that occur in fighting the disease. Ms. Burns states, “While there are organizations that provide excellent funding for research into the disease and the development of new treatments, we were unable to find an organization that provided direct financial contributions to families; we hope to fill that gap.” Finnz Fundz will outreach families through an already established network of Cystic Fibrosis care centers, focusing initial efforts in the New England Region.
For more information or interviews, contact Kerry Burns at (401) 527-1773.
Saturday, May 7, 2011
The launch party is taking shape!
We have officially booked Larry and the Reverbs as one of our entertainers...working on a second group!
The donations for the raffle are coming in fast and furious! Thanks Anne Marie Archambault Teixeira for the massive amounts of liquor (oh yeah, kids! liquor baskets!!!); Alice Morey for Red Sox tickets (YES!); Amy Bonin Wyman for offering her talents with a handmade felted clutch; Jennifer Hartman Cohn for the kids karate birthday party (valued at $200!); Valdeva Ives Crema for free website design; Jane A Mclellan for a gift certificate to the fabulous Salon Jaz AND Martha Hart Reed, Mariah Capurso and Tara Albrecht Roddick for offering to make some amazing jewelry....we are always accepting more donations, so keep them coming! :)
I have written and released an official press release about the foundation and the event--really hoping for some media coverage!
Thanks to everyone for spreading the word and supporting our event--it looks like we are more than halfway to venue capacity for the 4th!
If you want to reserve tickets, please click on the donate button on the blog, "donate" $10 X the number of tickets you want, and please put in the notes section that the money is for tickets. You'll go on a list and be all set at the door.
A huge thanks to Mary Day and Indigo Pizza (599 Tiogue Ave, Coventry, RI) for not only donating the space for the event, but for closing to the public during that time. We SO appreciate it!
The donations for the raffle are coming in fast and furious! Thanks Anne Marie Archambault Teixeira for the massive amounts of liquor (oh yeah, kids! liquor baskets!!!); Alice Morey for Red Sox tickets (YES!); Amy Bonin Wyman for offering her talents with a handmade felted clutch; Jennifer Hartman Cohn for the kids karate birthday party (valued at $200!); Valdeva Ives Crema for free website design; Jane A Mclellan for a gift certificate to the fabulous Salon Jaz AND Martha Hart Reed, Mariah Capurso and Tara Albrecht Roddick for offering to make some amazing jewelry....we are always accepting more donations, so keep them coming! :)
I have written and released an official press release about the foundation and the event--really hoping for some media coverage!
Thanks to everyone for spreading the word and supporting our event--it looks like we are more than halfway to venue capacity for the 4th!
If you want to reserve tickets, please click on the donate button on the blog, "donate" $10 X the number of tickets you want, and please put in the notes section that the money is for tickets. You'll go on a list and be all set at the door.
A huge thanks to Mary Day and Indigo Pizza (599 Tiogue Ave, Coventry, RI) for not only donating the space for the event, but for closing to the public during that time. We SO appreciate it!
Monday, May 2, 2011
Let's party! Our official launch...
We are planning to (finally!) officially launch Finnz Fundz, our 501(c)(3) non profit that was founded in honor of our son, Finnegan. Our mission is to help children and families fighting Cystic Fibrosis and coping with the long term hospitalizations that occur in fighting this insidious disease. Our goal is to provide direct financial assistance to families, as well as a sympathetic and understanding ear.
Event is on June 4th from 4-8pm at Indigo Pizza (599 Tiogue Ave, Coventry RI). We are planning kids karaoke from 4-5pm, some great live music, and an awesome raffle (some Alex and Ani will be included!). Oh, and PIZZA! :)
Tickets are $10 per person. Reserve your ticket now as space is limited!
If you are unable to attend, we hope you will consider helping us by making a direct monetary donation (via paypal or checks can be made payble to Finnz Fundz and mailed to 162 Custer Street, Warwick, RI 02889), or by donating goods or services to our raffle. Please share this event, our website and information about us with your Facebook friends.
All donations are tax deductible.
A big thanks to all those who have continued to support us on this journey!
Event is on June 4th from 4-8pm at Indigo Pizza (599 Tiogue Ave, Coventry RI). We are planning kids karaoke from 4-5pm, some great live music, and an awesome raffle (some Alex and Ani will be included!). Oh, and PIZZA! :)
Tickets are $10 per person. Reserve your ticket now as space is limited!
If you are unable to attend, we hope you will consider helping us by making a direct monetary donation (via paypal or checks can be made payble to Finnz Fundz and mailed to 162 Custer Street, Warwick, RI 02889), or by donating goods or services to our raffle. Please share this event, our website and information about us with your Facebook friends.
All donations are tax deductible.
A big thanks to all those who have continued to support us on this journey!
Sunday, January 23, 2011
We're official!!!
We are thrilled to let everyone know that Finnz Fundz is now an official 501(c)(3) tax exempt organization!!! WOOHOO! We are hard at work on our business and fundraising plans. We have several larger donors who were awaiting the word about our tax status--including a jewelry company that is going to design a piece for our organization! Exciting things to come!!!
Thursday, June 3, 2010
Finn's birthday...
It's Finn's birthday today. He would have been 6. Missing him terribly every day, but highlighted on days like this...
As a way to celebrate Finn, we filed articles of incorporation with the secretary of state today!!! Our filing will be official later this afternoon, then we start the IRS process. Slowly but surely making Finnz Fundz a reality!
As a way to celebrate Finn, we filed articles of incorporation with the secretary of state today!!! Our filing will be official later this afternoon, then we start the IRS process. Slowly but surely making Finnz Fundz a reality!
Sunday, December 20, 2009
Op-ed on CNN.com
Sen. Sheldon Whitehouse and Elizabeth Edwards have co-authored an op-ed that has been posted on cnn.com regarding bankruptcy reform.
http://www.cnn.com/2009/OPINION/12/15/edwards.whitehouse.medically.bankrupt/index.html
http://www.cnn.com/2009/OPINION/12/15/edwards.whitehouse.medically.bankrupt/index.html
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